Life at Evans Landing
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- What is Huntington's Disease?
Hey everyone, welcome to my blog where I share some interesting facts about various topics. Today, I want to talk about Huntington's disease, a rare and inherited condition that affects the brain. You may have heard of it from celebrities like Woody Guthrie or Gene Veritas, who have been diagnosed with it. But what exactly is Huntington's disease and how does it affect people who have it? Let's find out! Huntington's disease is caused by a genetic mutation that damages nerve cells in the brain, making them stop working properly. The mutation is passed on from parents to children, and each child of an affected parent has a 50% chance of inheriting it. The disease usually develops in midlife, but it can also start earlier or later. There is no cure for Huntington's disease, and it gets worse over time. The symptoms of Huntington's disease vary from person to person, but they generally fall into three categories: movement, cognitive, and psychiatric. Movement symptoms include involuntary jerking or writhing movements called chorea, muscle stiffness or spasms, slow or abnormal eye movements, difficulty with speech or swallowing, and problems with balance and coordination. Cognitive symptoms include difficulty with organizing, prioritizing, focusing, learning, remembering, and finding words. Psychiatric symptoms include depression, anxiety, irritability, mood swings, social withdrawal, insomnia, fatigue, and suicidal thoughts. Huntington's disease can have a huge impact on a person's functional abilities and quality of life. It can affect their work, relationships, hobbies, and independence. People with Huntington's disease need a lot of support and care from their family, friends, and healthcare professionals. They may also benefit from medications, therapies, and lifestyle changes that can help them cope with their condition. If you want to learn more about Huntington's disease, you can check out these sources that I used for this blog post: - Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/huntingtons-disease/symptoms-causes/syc-20356117 - Johns Hopkins Medicine: https://www.hopkinsmedicine.org/health/conditions-and-diseases/huntingtons-disease - NHS inform: https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/huntingtons-disease I hope you found this blog post informative and interesting. If you have any questions or comments, feel free to leave them below. And don't forget to subscribe to my blog for more awesome facts! See you next time!
- Welcome to Evans Landing!
Hi everyone, welcome to my blog! I'm Melanie, a 50-year-old wife, mom and Memie. Yes, that's what my grandkids call me, and I love it! I'm married to Vance, who is not only my husband but also my best friend. We met later in life and have been married for 11 years. We have a blended family with six kids and 12 grandkids. It's not always easy, but it's always rewarding. Our family is strong and full of love. I enjoy cooking, crocheting, and being crafty. I like to share my recipes, projects, and tips with you on this blog. I hope you find them useful and fun. Our 12 grandkids keep us on our toes. They are the joy of our lives, and we love spending time with them. We live on 10+ acres in Arkansas, in the beautiful house my grandparents built it back in 1959. It's a cozy and warm place, full of memories and love. My mom, then I grew up here, and now I get to see my grandkids enjoy the same backyard where I used to play. It's such a blessing to have this home and this family. Every morning I start my day with a cup of coffee and my Bible. Following Jesus is the most important thing in my life. He is my Savior, my Lord, and my Friend. He gives me strength, peace, and joy. I want to live for Him and share His love with others. Thank you for visiting my blog. I hope you come back often and leave me a comment. I'd love to hear from you and get to know you better. Have a blessed day!
- Who we are...
Hi everyone, welcome to our blog! We are Melanie and Vance, a happy couple who have been married for almost 12 years. We want to share our story with you and inspire you to live a life full of love and faith. We both had previous marriages that ended in divorce. We each had kids from those marriages: I had four and he had two. When we met, we knew we had a lot in common and we felt a strong connection. We decided to blend our families and make a new one together. It wasn't easy, but it was worth it. We learned to communicate, compromise, and support each other through the ups and downs of parenting. Vance is an amazing man who has dedicated his life to helping others. He has been working as an EMT for 30 years and as a part-time police officer for 12. He loves his job and he is always ready to serve his community. I admire him so much for his courage and compassion. I used to work as an EMT and then in Home Health, but I retired five years ago. Now I stay at home and take care of our home. I enjoy cooking, crocheting, and being surrounded by our grandchildren. We are blessed with a wonderful family. Our kids are all grown up and have their own lives most live close by, but two still live at home. God has blessed us with 12 precious grandkids: five boys and seven girls. They are the joy of our lives, and we love spending time with them. God is the center of our marriage. We believe that He brought us together and He guides us every day. We pray together, worship together, and serve together. He is our source of strength and peace. We are best friends and we love each other more than ever. We like to have fun, laugh, and are so blessed to be able to live life together. Our marriage is built on respect, trust, and supporting each other no matter what. We are not perfect, but we are perfect for each other. We hope you enjoyed reading our blog post and getting to know us better. We would love to hear from you, so feel free to leave a comment or send us a message. Thank you for visiting our blog and God bless you!
- Our Journey with Juvenile Huntington's Disease
Hello, everyone! Welcome to my blog, where I share my life stories and experiences with you. Today I want to share something very personal and important with you. As some of you may know, my amazing son Greg is living with Juvenile Huntington's Disease (JoHD). Huntington's Disease is a genetic disorder that affects the brain and causes progressive loss of physical and mental abilities. It's a very cruel and devastating disease that has no cure. Greg inherited the faulty gene from his dad, who got it from his dad. Greg's Pepaw and Gramma Jack both passed away from Huntington's Disease. Greg started showing symptoms as a teenager, and decided to get tested when he was 18 years old. He wanted to know if he had the gene or not, and if that was responsible for all of the health issues he was dealing with. The test was simple: a blood sample and a few weeks of waiting. The result was not: Greg tested positive for Huntington's Disease. A positive CAG means that the person will have a 100% chance of developing the disease at some point in their life. It could be in 10 years, or 20, or 30, or more. There's no way to predict when it will start or how fast it will progress. There's no way to prevent it or treat it. In Greg's case, his showed early, or juvenile, onset. JoHD was the cause of his health decline, and he had also developed epilepsy as a result. He is such a brave and cheerful guy, and his laugh always makes me smile. He inspires me every day with his strength and optimism. Greg decided to not let Huntington's Disease define or limit him. Living with JoHD is not easy, and Greg faces many challenges and difficulties. But he never gives up, and he always finds joy in the little things. He loves playing video games, reading comic books, joking with friends on Discord, and watching movies. He will tell you that there is nothing a cup of coffee and some mac n cheese can't fix. Greg has a great sense of humor, and he cracks me up with his jokes. He is always positive, and I'm so proud of him. I hope that by sharing our story, we can raise awareness and support for Juvenile Huntington's Disease research and treatment. It's a rare and devastating condition, but there is hope for a cure. Greg is not alone; he has a wonderful community of friends and family who support him and care for him. We are grateful for every day our family has together, and we look forward to the future. Thank you for reading this blog post, and please feel free to leave your comments or questions below. I would love to hear from you and connect with you. Until next time, stay positive and keep smiling!